John'sUpdates
 
     
13 N ov 2010

Hi All,

John’s counts are still around zero.   It’s taking longer for a turnaround this time—his doctor thinks that it probably reflects the cumulative effect of his previous chemo and recent radiation to his bone marrow.  He needed one transfusion of platelets and may need more before this is over…our 19 yr/old nephew donated today—it was so touching.  Transfusions are a normal and expected part of his recovery.  John continues to do well with it all—he has not complained once. He exercises and walks every day—he wants to walk a mile a day!  He’s also been reading listening to his music, and watching as many games as he can.  He’s also been enjoying the cards, emails and other good thoughts and prayers you’ve been sending his way.  Thanks so much.

Debbie 

 

 

John Kidwell Room 6135

City of Hope

1500 East Duarte Road

Duarte, CA  91010

626-256-HOPE (4673)

johnkidwell@jkkidwell.com

 
4 Nov 2010

Hi Everyone,

John has completed his third day of radiation and he’s doing very well---only one more day to go!   He’s experienced some side effects but he’s doing well with those also.  He has two TX of approximately 1 hour’s length each day but he spends 3 hrs with each treatment due to transporting and waiting time.  I actually think it’s been a good thing for him to have 6 hrs of his day scheduled.  Friday his stored stem cells will be implanted.  The process then becomes the same as it was for his first transplant:

His white count drops to zero then needs to climb back up to normal numbers before he’s discharged—that takes between 12-14 days.  It’s during those 12-14 days that he’ll be bored!  He is on a negative pressure, infection controlled floor and again has a low bacteria diet.  Last hospitalization he was able to have visitors with the exception of 2-3 days.  Again he can’t have flowers or balloons but can have and loves to get cards, e-mails, phone calls etc. 

 

John Kidwell Room 6135

City of Hope

1500 East Duarte Road

Duarte, CA  91010

 

626-256-HOPE (4673)

johnkidwell@jkkidwell.com

 

 

Thanks so much for all of your support.  I hope this note answers most of the questions you might be wondering about.  Hope this finds you all well.

Debbie

 
20 Oct 2010

Hey Susie,

Can you send an update out to our class?  I’d like to let everyone know that John has done really well with his recovery from the first transplant.  He still feels somewhat weak, especially his legs.  He won’t go into the hospital again until Halloween now.  They need to make a mold of his body for the radiation and it won’t be done in time to go in this Sunday so we’ve had to push it back a week.  They won’t start the radiation until the Nov 1at at which time he begins twice a day radiation for four days before they reintroduce his stem cells.  He’ll be at City of Hope again.  Hopefully, this will put him into complete remission.  Our goal is to be good to go again by the first of the year!  Thanks for all the wonderful thoughts and prayers—they help so much.   

-- Debbie 

 

 

 

City of Hope National Medical Center  (just City of Hope should do)

1500 East Duarte Road

Duarte, CA  91010

626-256-HOPE (4673)

johnkidwell@jkkidwell.com

deborahkidwell@verizon.net

3119 Montana Lane

Claremont, CA  91711

 
20 Aug, 2010
 I thought It was a good time to send an update to post on our class website re:  John’s progress.  

John’s done very well with the first phase of treatment, has gone through stem cell harvesting and is scheduled for admission next Wednesday, the 25th, to begin the transplant process.  He was very proud of his stem cell production and collection—they collected 5.6 million the first day which was more than half of the goal set for 2 transplants. 

 

We know that 2 ½ -3 weeks in the hospital will not be easy.  John’s a bit ADD so that once he starts getting some strength back he’ll be restless and bored.  So phone calls, emails or cards would be a great boost!  He can’t have flowers or plants, silk or fresh—possible bacterial contamination.  Contact information is:

 John’s spirit and attitude have remained remarkably good—this next part is a lot harder but I know he’ll do it well—he’s John.  Thank you, thank you for all your kind thoughts and prayers.  Debbie

City of Hope National Medical Center  (just City of Hope should do)

1500 East Duarte Road

Duarte, CA  91010

626-256-HOPE (4673)

johnkidwell@jkkidwell.com

deborahkidwell@verizon.net

3119 Montana Lane

Claremont, CA  91711

 
15 June, 2010

Hi Susie and Kevin,

The news is a little brighter out here on the west coast. John’s mid treatment test results came back with some encouraging news. The drugs are doing what they are supposed to do killing myeloma cells. In fact, John's test results were near normal after six of twelve treatments. This is not to say he is in remission yet, but the signs are encouraging.

Additionally, the neurosurgeon has given him the green light to start exercise again as his spine appears stable enough to return to a more normal activity level. He now has 4-6 more weeks of chemo therapy at which time the dr. will reassess and likely recommend the stem cell transplant. We certainly are encouraged but not wanting to get ahead of ourselves. We should have better view of the remission status by late July. Hopefully, we’ve got only another 3-4 months of treatment before we can get our lives back to normal.  I could probably talk some about the incredible scares we’ve had but since John’s treatment is being so effective—those scares don’t really matter.

We want to thank all for their concern, calls, notes and prayers. John and I are so appreciative of all of them. It is extraordinary to have so many classmates reach out with such genuine concern…and we enjoy hearing from all so don’t hesitate to call!

We love you all,

Deb

 
9 April, 2010

Hi,

I really don’t have much to report except that according to the ,prognostically-oriented, International Staging System John is in Stage I—so we have a good starting point!.  Still waiting for results from cytogenetic testing –it indicates which drugs or combination of drugs will best arrest his disease.  April 15th is our next appt. with the oncologist at USC.  We’re hoping to schedule an appt. with City of Hope where he will, most likely, be getting his treatment—they have an excellent Multiple Myeloma Team and it’s less than half an hour from home. Most importantly, we feel confident that he will have state- of- the -art treatment there.

 

John looks pale to me and has some difficulty walking due to back pain but his attitude and spirit are pretty good.   Marc has been wonderful!!!  It’s a great comfort to John and me to have him on our team.  And our class has been amazing—we’ve heard from so many people with such kind words for John and our family.  Rick Beatty sent a note that was hilarious!  I think that his friends are a great diversion for him—he enjoys the contact.

 

Julie’s coming tomorrow to start a website re:  John’s treatment progress.  I’ll let you know when that’s up.

 

I’ve gone into Social Worker mode –it’s helpful to have concrete tasks.  Thank you for all your support.  Debbie

 
29 March, 2010
Hi all,
     Over the years we have asked for special prayers for our classmates who have needed them.  You may not have realized how important these prayers have been to our friends and their families.  We have another special request.   Debbie Michael Kidwell wrote to tell me they have just discovered that John has Multiple Myeloma and is very seriously ill.  This week has been a whirlwind of doctors, tests and decisions on different protocols and treatments.  She has promised that their daughter will be sending out weekly updates and will include us in her e-mails.  As I receive them, I will send them along to Frank Cox who will have have a special section for John's updates on our website--69elks.com.
     Debbie was thankful that we would be sharing this information with everyone.  She has asked that we please keep John in our thoughts and prayers.  If you'd like to drop a note or card to them, you can send it to:
 
                                                                               Debbie & John Kidwell
                                                                               3119 Montana Lane
                                                                               Claremont, California 91711
 
     We have a truly special class and I think one with some special powers.  If anyone needs our help with prayers, please send us an e-mail and we'll spread the word.
 
     ~Susie